Research Specialist
UCSF Bioethics
Publications
'It's not discrete, it's not going to be easy': A qualitative analysis of the practical application of syndemic theory in healthcare.
Global public health
Syndemic Theory and Its Use in Developing Health Interventions and Programming: A Scoping Review.
Current HIV/AIDS reports
Experts' Views on Children's Access to Community-Based Therapeutic and Education Services After Genomic Sequencing Results.
Journal of developmental and behavioral pediatrics : JDBP
How do we understand the value of drug checking as a component of harm reduction services? A qualitative exploration of client and provider perspectives.
Harm reduction journal
Author Correction: Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population.
NPJ genomic medicine
The Parent PrU: a measure to assess personal utility of pediatric genomic results.
Genetics in medicine : official journal of the American College of Medical Genetics
Barriers and Facilitators of High-Efficiency Clinical Pathway Implementation in Community Hospitals.
Hospital pediatrics
The Need to Standardize the Reanalysis of Genomic Sequencing Results: Findings from Interviews with Underserved Families in Genomic Research.
Journal of bioethical inquiry
Insights from Drug Checking Programs: Practicing Bootstrap Public Health Whilst Tailoring to Local Drug User Needs.
International journal of environmental research and public health
Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population.
NPJ genomic medicine
Information-Seeking Preferences in Diverse Patients Receiving a Genetic Testing Result in the Clinical Sequencing Evidence-Generating Research (CSER) Study.
Genetics in medicine : official journal of the American College of Medical Genetics
"I Have Fought for so Many Things": Disadvantaged families' Efforts to Obtain Community-Based Services for Their Child after Genomic Sequencing.
AJOB empirical bioethics
Medical traumatic stress in cystic fibrosis: A qualitative analysis.
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
The social value of genomic sequencing for disadvantaged families facing rare disease.
Social science & medicine (1982)
The Challenge of Recruiting Diverse Populations into Health Research: An embedded social science perspective.
New genetics and society
Parental Hopes and Understandings of the Value of Prenatal Diagnostic Genomic Sequencing: A Qualitative Analysis.
Frontiers in Genetics
"Let's Just Wait Until She's Born": Temporal Factors That Shape Decision-Making for Prenatal Genomic Sequencing Amongst Families Underrepresented in Genomic Research.
Frontiers in Genetics
Perspectives and preferences regarding genomic secondary findings in underrepresented prenatal and pediatric populations: A mixed-methods approach.
Genetics in medicine : official journal of the American College of Medical Genetics
The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research.
Genetics in medicine : official journal of the American College of Medical Genetics
Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research.
Frontiers in neuroscience
Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium.
Journal of Clinical and Translational Science